Since 2008, The National Palliative Care Registry™ has been collecting information from and reporting back to hospital-based palliative care programs. It is the only repository of information about operational features — structures and processes of care of our nation’s palliative care services. The goal of the Registry is to assist hospital palliative care services in tracking their development year-to-year, as well as to promote standardization and improve the quality of palliative care in the United States. Over the past six years, more than 1,000 programs have participated.
How It Works
Each year, through the Registry website, palliative care programs enter data about their palliative care programs: population served, service offerings, staffing, funding, future plans and other data. The Registry is open to all hospital-based palliative care teams and there is no fee to participate. The collection period for 2014 data opens on March 2, 2015.
The Importance of Data
By registering your program, palliative care teams will have access to peer-comparison reports that serve as tools to inform decision making and program quality improvement. Participation also contributes to standardization and quality for palliative care nationwide. CAPC recently released the results of The National Palliative Care Registry™ 2012 Annual Survey which reported on the growth of palliative care over the past decade.
Many palliative care experts say it does not stop there. Comprehensive data can also help your team articulate your accomplishments and successes to departmental and institutional leaders. In the following video, CAPC Member and Registry user Lori Yosick, Executive Director at Mount Carmel Hospice and Palliative Care, discusses how data has helped her program strengthen partnerships with administrators within her organization, as well as with referral sources.