By Elizabeth Burpee, MD
Project Director, Project ECHO to Expand Palliative Care in the Carolinas
Clinician and Researcher, Four Seasons Compassion for Life
As the need for palliative care services continues to grow, many providers find ourselves needing to be in too many places at once. In addition to clinical duties, we are called on to staff committees, teach students and residents, participate in research, market our services, and attend and present at conferences. We feel compelled to do these things because we believe that palliative care is the answer for much of what ails us in medicine today. We also know the following: that burnout in our field is high, there is a significant workforce shortage, there is an ever-expanding body of knowledge that we must master, and budgets are tight. In addition, especially for those of us practicing in a rural setting, we have limited resources, a sense of isolation, and spend a lot of time driving in “windshield-time.”
In an effort to address some of these needs in our corner of the country, with the help of The Duke Endowment and The ECHO Institute, the research department at Four Seasons Compassion for Life is embarking on an exciting project-journey called “Project ECHO to Expand Palliative Care in the Carolinas.”
What is Project ECHO?
Started at the University of New Mexico Health Sciences Center in 2003 by gastroenterologist Dr. Sanjeev Aurora, Project ECHO (Extension for Community Healthcare Outcomes) is a movement to demonopolize specialist knowledge and amplify the capacity to provide best practice care for underserved people. It began by developing an educational model to train frontline primary care providers in rural/underserved areas of New Mexico to care for patients with hepatitis C in their own communities. Using multisite teleconferencing, Project ECHO links specialists in a particular field at a “hub” with clinicians in local communities who are considered the “spokes” of the model. Together the hub and spokes participate in weekly videoconference “teleECHO” sessions (see Anatomy of a Project ECHO Session below) that allow for knowledge sharing and mentoring.
If you want to know more about Project ECHO’s roots, you can watch Dr. Aurora speak at TEDxABQ:
Since 2003, Project ECHO has grown to more than 130 ECHO projects in the United States and internationally, covering 65 complex medical conditions and other problems. There are several standout palliative care ECHO projects, which include MD Anderson Project ECHO-Palliative Care Africa, Alaska Native Tribal Health Consortium Palliative Care ECHO, Northern Ireland Hospice Palliative Care ECHO, and Trivandrum Institute of Palliative Sciences Project ECHO in India. There are multiple other sites, both in the U.S. and around the world, in various stages of development for palliative care ECHO.
Project ECHO to Expand Palliative Care in the Carolinas: First Steps
In October 2017, Four Seasons Compassion for Life, in partnership with Duke University Palliative Care and DeltaCareRX, was awarded $750,000 for a two-year project using Project ECHO to achieve the following goals:
- Increase the number of providers in the Carolinas with training and mentorship in palliative care
- Improve frontline provider knowledge and skills so they can deliver high-quality palliative care to their own patients
- Increase patient access to serious illness care that will improve patient/caregiver quality of life, lessen symptom burden, and improve patient/family satisfaction with communication about what to expect as well as sense of support through the course of illness
- Increase hospice utilization and length of stay in rural communities
We put together a palliative care specialist team that will include a palliative care MD, nurse practitioner, clinical social worker, pharmacist, and spiritual care expert. In addition, our project coordinator and data coordinator will be participating in all ECHO conferences. We are deep in the processes of recruiting participant sites in the Carolinas, developing a core curriculum, and planning our approach to data collection and evaluation. We will use QDACT, a point of care patient reported outcomes data gathering system developed by the Global Palliative Care Quality Alliance, to drive quality improvement.
We are recruiting both palliative care specialists who are practicing in isolated or non-academic settings as well as frontline primary care providers who want to augment their palliative care skills. Thus far, we have received overwhelming support for this project from the palliative care community in the Carolinas, with multiple sites committing to join our ECHO community. At the end of January our expert team traveled to the ECHO Institute at the University of New Mexico Health Sciences Center for a three-day immersion course on all things ECHO. Learn more about Project ECHO immersion.
Anatomy of a Project ECHO Session
The participant sites (spokes) will dial in to an every-other-week teleconference session. The elements of a session include:
- A one-hour long meeting, held over the lunch hour
- A case presentation given by a spoke site followed by discussion with the expert team (hub) with recommendations and input from other participating spokes
- A 20-minute didactic presentation on elements of palliative care best practices
After the sessions, the palliative care specialist hub team will be available to the spokes to continue discussion and recommendations for the cases presented and for mentorship. In essence, a learning community is formed that works together and helps others solve day-to-day patient care challenges in the field.
Thinking Big and Overcoming Challenges
What appeals to us about Project ECHO is the use of widely available videoconferencing technology to diffuse medical knowledge and best practices to frontline clinicians no matter where they practice or what their background. This learning/sharing model works as a tool for leveraging palliative care specialist level expertise by providing support, encouragement, and a safe place to improve our colleagues’ practices.
The major barriers to access to palliative care—rural settings, limited access to consultants, lack of palliative care training, knowledge and skills, and the palliative care workforce shortage—are broken down with use of Project ECHO. If we can successfully use this guided practice model we will scale access to high-quality palliative care to many more seriously ill patients and their families. If we can objectively demonstrate the value of the Project ECHO model in palliative care in the Carolinas, then we can work with others towards a successful national expansion. We are pleased to give quarterly updates to the CAPC community as we progress.
Email Dr. Elizabeth Burpee with questions or comments.
The Center to Advance Palliative Care online curriculum can help all frontline clinicians improve their palliative care knowledge and skills. For clinicians working in rural settings or with underserved populations, CAPC’s Building Your Community Program operational training curriculum provides tools and resources for building a thriving, sustainable community-based palliative care program. The Master Clinician Series is a great way to connect with peers in the field for discussions around complex clinical issues, and Virtual Office Hours afford an opportunity to connect with experts in program design from a distance.