CAPC News Bites, January 6, 2017

What you need to know this week

The Effectiveness and Value of Palliative Care in the Outpatient Setting

The Institute for Clinical and Economic Review has developed an evidence report on palliative care in the outpatient setting. The objective of this review was to synthesize evidence describing the relative effectiveness of outpatient palliative care relative to “usual care, its drivers, and associated costs.” The report focuses on higher-quality comparative studies of outpatient palliative care interventions delivered in the United States or Canada, and incorporates elements directed at both physical and psychosocial patient care, including multidisciplinary care teams, palliative care specialists, patients and families, education, advanced care planning, and monthly-in person office visits. Click here to view this comprehensive report.

Palliative Care Helpful for Bone Marrow Transplant Patients

According to a new study, integrating palliative care into the treatment plan of cancer patients undergoing hematopoietic stem cell transplantation (HCT) can improve their quality of life.

Researchers at Massachusetts General Hospital, Duke University, and other institutions conducted a randomized clinical trial among 160 adults with hematologic malignancies–such as leukemia and lymphoma–undergoing autologous or allogeneic HCT, in order to assess the effect of inpatient palliative care on patient- and caregiver-reported outcomes during hospitalization for HCT, and three months after transplantation. Results indicated significantly better quality of life (QOL) scores for those receiving the palliative care intervention than for the usual treatment group, both at the two-week and the three-month assessments. Patients receiving the palliative care intervention also reported lower levels of depression, anxiety, and physical symptoms at two weeks, and continued to experience less depression, better QOL, and fewer post-traumatic stress symptoms than the control group at three months. Click here for more details.

Calling All Pediatric Palliative Care Providers

CAPC recently launched three new resources to support pediatric palliative care programs. Here’s a rundown of each:

  • Pediatric Palliative Care Survey in the CAPC National Registry: Submit your program data now to generate individualized performance reports on program structure and operations, as well as comparisons to other pediatric palliative care programs. CAPC membership is not required.
  • The Pediatric Palliative Care Field GuideA catalog of field-wide program development tools, support sources for field research, and an updated value statement to help programs make the case for pediatric palliative care resources.
  • The CAPC Pediatric Palliative Care ToolkitA collection of new, practical tools and technical assistance for pediatric palliative care programs developed by leaders and experts across the country. This toolkit is available to CAPC members now in CAPC Central. For more information on becoming a CAPC member, click here.

 

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